Most families have never heard of pediatric neuroblastoma until their child Is diagnosed. This lack of awareness can amplify their fear and uncertainty about the diagnosis. To ease families’ uncertainty at every step of the pediatric neuroblastoma journey, we were asked to create a one-stop, comprehensive educational initiative: Braving Neuroblastoma. The Braving Neuroblastoma initiative had to include:

1.     Neuroblastoma-info.com, a comprehensive website that provides a positive, credible, and centralized source of information to deal with all aspects of the neuroblastoma journey, from diagnosis to treatment to life after treatment

2.     A series of educational children’s books available for download

o   To bring the story of neuroblastoma survivorship to life, and increase focus on this neglected area, we had to create a new installment in our award-winning Skivolo children’s book series, based on the personal experiences of neuroblastoma survivors

3.     A public relations partnership with former NFL player, Devon Still and his daughter, Leah, a neuroblastoma survivor to drive awareness of our initiative

o   Devon and Leah provided a hopeful, inspirational example for families dealing with neuroblastoma by sharing the story of their very public, yet very personal battle with neuroblastoma